Provision of Cystic Fibrosis Registry

{
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      "id": "023100-2026-1",
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      ],
      "status": "active",
      "suppliers": [
        {
          "id": "GB-FTS-177231",
          "name": "CYSTIC FIBROSIS TRUST"
        }
      ]
    }
  ],
  "bids": {
    "statistics": [
      {
        "id": "1",
        "measure": "bids",
        "relatedLot": "1",
        "value": 1
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      {
        "id": "2",
        "measure": "smeBids",
        "relatedLot": "1",
        "value": 0
      },
      {
        "id": "3",
        "measure": "foreignBidsFromEU",
        "relatedLot": "1",
        "value": 0
      },
      {
        "id": "4",
        "measure": "foreignBidsFromNonEU",
        "relatedLot": "1",
        "value": 0
      },
      {
        "id": "5",
        "measure": "electronicBids",
        "relatedLot": "1",
        "value": 1
      }
    ]
  },
  "buyer": {
    "id": "GB-FTS-130973",
    "name": "NHS England"
  },
  "contracts": [
    {
      "awardID": "023100-2026-1",
      "dateSigned": "2026-03-09T00:00:00Z",
      "id": "023100-2026-1",
      "status": "active",
      "value": {
        "amount": 131793.5,
        "currency": "GBP"
      }
    }
  ],
  "date": "2026-03-13T15:07:04Z",
  "id": "023100-2026",
  "initiationType": "tender",
  "language": "en",
  "ocid": "ocds-h6vhtk-066a1e",
  "parties": [
    {
      "address": {
        "countryName": "United Kingdom",
        "locality": "London",
        "postalCode": "SE1 8UG",
        "region": "UKJ1",
        "streetAddress": "Wellington House, 133-135 Waterloo Rd"
      },
      "contactPoint": {
        "email": "russell.greenwood@nhs.net",
        "name": "Russell Greenwood"
      },
      "details": {
        "buyerProfile": "https://www.england.nhs.uk/",
        "classifications": [
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            "id": "BODY_PUBLIC",
            "scheme": "TED_CA_TYPE"
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            "description": "Health",
            "id": "07",
            "scheme": "COFOG"
          }
        ],
        "url": "https://www.england.nhs.uk/"
      },
      "id": "GB-FTS-130973",
      "identifier": {
        "legalName": "NHS England"
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      "name": "NHS England",
      "roles": [
        "buyer"
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    },
    {
      "address": {
        "countryName": "United Kingdom",
        "locality": "London",
        "postalCode": "EC3N 1RE",
        "region": "UKE"
      },
      "details": {
        "scale": "sme",
        "url": "http://cysticfibrosis.org.uk"
      },
      "id": "GB-FTS-177231",
      "identifier": {
        "id": "03880213",
        "legalName": "CYSTIC FIBROSIS TRUST"
      },
      "name": "CYSTIC FIBROSIS TRUST",
      "roles": [
        "supplier"
      ]
    },
    {
      "address": {
        "countryName": "United Kingdom",
        "locality": "London",
        "postalCode": "WC2A 2LL",
        "streetAddress": "The Strand"
      },
      "id": "GB-FTS-1661",
      "identifier": {
        "legalName": "The High Court"
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      "name": "The High Court",
      "roles": [
        "reviewBody"
      ]
    }
  ],
  "tag": [
    "award",
    "contract"
  ],
  "tender": {
    "classification": {
      "description": "Database services",
      "id": "72320000",
      "scheme": "CPV"
    },
    "coveredBy": [
      "GPA"
    ],
    "description": "To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub.\u003cbr/\u003eTo provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following:\u003cbr/\u003e\u2022\u003cbr/\u003eCompliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on.\u003cbr/\u003e\u2022\u003cbr/\u003eThat Authority will make every effort to provide the maximum possible notice of such requests.\u003cbr/\u003e\u2022\u003cbr/\u003eThat, on receipt of an ad hoc request, the Supplier will provide an estimated delivery date. The Supplier will aim to complete requests within 10 working days. This period may have to be extended subject to the complexity of the request, and concomitant work streams.\u003cbr/\u003e\u2022\u003cbr/\u003eThat the Supplier will make all reasonable efforts to comply with specific deadlines set by Authority\u003cbr/\u003e\u2022\u003cbr/\u003eAny data requests for Research purposes are subject to approval by the Registry Research Committee (a sub-group of the Registry Steering Committee).",
    "id": "ocds-h6vhtk-066a1e",
    "items": [
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            "region": "UKE"
          }
        ],
        "id": "1",
        "relatedLot": "1"
      }
    ],
    "legalBasis": {
      "id": "32014L0024",
      "scheme": "CELEX"
    },
    "lots": [
      {
        "awardCriteria": {
          "criteria": [
            {
              "type": "price"
            }
          ]
        },
        "description": "To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub.\u003cbr/\u003eTo provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following:\u003cbr/\u003e\u2022\u003cbr/\u003eCompliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on.\u003cbr/\u003e\u2022\u003cbr/\u003eThat Authority will make every effort to provide the maximum possible notice of such requests.\u003cbr/\u003e\u2022\u003cbr/\u003eThat, on receipt of an ad hoc request, the Supplier will provide an estimated delivery date. The Supplier will aim to complete requests within 10 working days. This period may have to be extended subject to the complexity of the request, and concomitant work streams.\u003cbr/\u003e\u2022\u003cbr/\u003eThat the Supplier will make all reasonable efforts to comply with specific deadlines set by Authority\u003cbr/\u003e\u2022\u003cbr/\u003eAny data requests for Research purposes are subject to approval by the Registry Research Committee (a sub-group of the Registry Steering Committee).",
        "hasOptions": false,
        "id": "1",
        "status": "cancelled"
      }
    ],
    "mainProcurementCategory": "services",
    "procurementMethod": "limited",
    "procurementMethodDetails": "Award procedure without prior publication of a call for competition",
    "procurementMethodRationale": "Reg 32(2)(b)(ii) and (iii) PCR 2015 Repeating similar.",
    "procurementMethodRationaleClassifications": [
      {
        "description": "The works, supplies or services can be provided only by a particular economic operator due to protection of exclusive rights, including intellectual property rights",
        "id": "D_PROTECT_RIGHTS",
        "scheme": "TED_PT_AWARD_CONTRACT_WITHOUT_CALL"
      }
    ],
    "status": "complete",
    "title": "Provision of Cystic Fibrosis Registry"
  }
}